ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Esteban Alterman, of Jerusalem, Israel. Lost to ALS in 2020 at age 56. My brother, Esteban Alterman, my hero, lost his 13-year battle to ALS in June 2020. He inspired me every day and still does. Esteban was a renowned photographer who was born in Argentina and lived in Israel with his wife and two children. You’ll always be my hero, Esteban! 💚 Elena . To submit a tribute about you or for your ALS hero, simply click: https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. . #ALS #ALSawarenessMonth #FacesOfALS #EstebanAlterman #Jerusalem #Israel #Argentina #Photographer #ALSHusband #ALSDad #ALSBrother #ALSAngel #ALShero #Fighter #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
ALS ONE
Fundraising
Whitman, MA 498 followers
United in ALS research and care. We're not done until we're ALS DONE.
About us
A partnership of world-leading ALS researchers and caregivers who have united to advance critical scientific studies towards treatments leading to an ultimate cure for ALS while simultaneously providing essential equipment and care resources to individuals who are currently living with the disease. The joining of forces and continual fundraising through events and philanthropic donations help to cut bureaucratic red tape to combat the disease more efficiently and effectively for all. Since founding in January of 2016, ALS ONE has raised over $14M, making measurable & meaningful advancements while helping families in Massachusetts, New England, the northeast, and nationwide. Our founder, Kevin Gosnell, lost his battle to ALS in 2016 but we're growing stronger than ever. Our partnership includes: • Dr. Robert Brown, MD, DPhil, Professor & Chair of Neurology at UMass Memorial Medical School. • Dr. Merit Cudkowicz, MD, MSc, Chief, Neurology Department - Director, Sean M. Healey & AMG Center for ALS Mass General Hospital (MGH) and Julianne Dorn Professor of Neurology Harvard Medical School. • James Berry, MD, MPH, Associate Chief of Neuro-therapeutics and Chief of the Division of ALS and Motor Neuron Diseases at MGH and Director of the MGH Neurological Clinical Research Institute (NCRI). • Sabrina Paganoni, MD, PhD, Co-Director of the Neurological Research Institute (NCRI) at MGH, physician scientist at the Healey & AMG Center for ALS, and Associate Professor at Harvard Medical School at MGH. • Dr. Fernando Vieira, MD, Chief Executive Officer and Chief Science Officer at The ALS Therapy Development Institute. • Ron Hoffman, Executive Director and Founder of Compassionate Care ALS. Staff: Jennifer DiMartino, Executive Director Ashley Corbin, Event Director Contact: Phone: 781.523.3304 Email: info@alsone.org Address: 8 Industrial Way, Whitman MA 02382 Board of Directors: Mark Sullivan, Chairman of the Board Matt Hogan Michael Braun Jennifer DiMartino Scott Gosnell
- Website
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http://www.alsone.org
External link for ALS ONE
- Industry
- Fundraising
- Company size
- 2-10 employees
- Headquarters
- Whitman, MA
- Type
- Nonprofit
- Founded
- 2016
- Specialties
- ALS, Lou Gehrig's Disease, Research, Neurology, Medical Equipment, Fundraising, and Support
Locations
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Primary
8 Industrial Way
Whitman, MA 02382, US
Employees at ALS ONE
Updates
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Lynette de Salme Garcia, of Canyon Lake, TX. Lost to ALS in 2020 at age 50. Our beautiful and loving sister Lynette lived courageously and gracefully with ALS for 5 years until her passing in May of 2020. She was a talented artist making everything around her beautiful. She found a peace and calmness in her love of nature. Her bright light shines on in her 2 boys and in all of our hearts. With much love, Lynette’s sisters, 💚 Colleen and Teri To submit a tribute about you or for your ALS hero, simply click: https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. #ALS #ALSawarenessMonth #FacesOfALS #LynettedeSalmeGarcia #CanyonLakeTX #ALSAngel #ALShero #ALSmom #Sister #Fighter #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Devin Eustis, 24, of Lawndale, IL. Diagnosed with ALS at age 20. Devyn is my ALS Hero. She was an athlete and cheerleader in high school and experienced her first symptoms at 18 almost immediately after graduation. She has always maintained her upbeat sense of humor and wit even on some of the darkest of days fighting this disease. Her best friend and protector is her dog Gunnar. Her Dad and I are so proud of her and want people to know that ALS can affect anyone at any age. We LOVE you! 💚 Mom and Dad . To submit a tribute about you or for your ALS hero, simply click https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. . #ALS #ALSawarenessMonth #FacesOfALS #DevynEustis #LawndaleIL #ALShero #Gunnar #Cheerleader #Fighter #MomAndDadLoveYou #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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It was a great night of action and inspiration at Winchester High School last night as their Boys’ Volleyball Team’s hosted their annual SPIKE OUT ALS matches. JVA topped St. John's Prep, 2-0, JVB defeated Cambridge Rindge and Latin School, 2-1, but St. John's Prep dominated V, to take home the win. Gracious host, Coach John Fleming, has been holding this very special event each year since one of his teammate’s player’s dad, Rick Marks, was diagnosed, and then in a horrific personal twist, Coach Fleming’s own dad, Billy, was diagnosed just a few months later. The world lost those two great men within 4 months of each other in 2018, which was 5 years after St. John's Prep lost their Coach, Paul “Wally” Seaver, to the disease as well. This annual match means so much to so many and it’s always such a joy to spend time with this incredible community while helping to end the disease that has impacted them so devastatingly. The 3-day Las Vegas Getaway raffle is still on until May 22nd and tickets can be purchased by going to: https://lnkd.in/eEgjpK9X. Every dollar goes directly to ALS research and care. #ALS #ALSONE #WinchesterMA #WinchesterBVB #RedAndBlack #StJohnsPrep #InMemory #RJM #WJF #PFS #LasVegasGetaway #LasVegasRaffle #SpikeOutALS #Volleyball to #EndALS. Winchester High School
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Michelle Strojny, 53 of Raynham, MA. Michelle was my first built in best friend, even though she is OLDer and has always tortured me 🤣. She has taken a horrible diagnosis, and turned it into helping others diagnosed, current and future, creating her own fundraisers, raising money, raising awareness. Michelle is someone I’ve always looked up to, still do, and always will. She even officiated my wedding. I’m honored to have her as my cousin, and even luckier she’s one of my best friends. Love, your YOUNGer cousin, 💚 Kerry . To submit a tribute about you or for your ALS hero, simply click https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. . #ALS #ALSawarenessMonth #FacesOfALS #MichelleStrojny #RaynhamMA #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #RiseAgainstALS #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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⛳️ SPONSORSHIPS AND FOURSOMES are now OPEN for our 8th Annual LUAU ON THE LINKS for ALS research & care! Join us on July 15, 2024 at Granite Links in Quincy, MA – overlooking the stunning Boston skyline! Check-in begins at 12:30 and scramble tee-off is at 1:30 with our signature cocktail and dinner reception immediately following in the outdoor Pavilion! ⛳️ Our luau-themed summer tourney is a beloved fun and festive day, so get your collared Hawaiian shirt and clubs ready for a day of fun to help make ALS DONE! ⛳️ LUAU ON THE LINKS - Teeing it up to #EndALS! ⛳️ Featuring: • On-course contests • On-course Giveaways • Steel Drum Band • Lunch & Dinner • Swag bag • Raffles • Silent Auction ⛳️ To register, sponsor, or both, simply visit: https://lnkd.in/eSjxKZJv ⛳️ #ALS #ALSGolf #ALSEvent #ALSBoston #BostonGolf #Luau #LuauOnTheLinks #TeeItUp to support #Research and #Care #WeHaveFunToMakeALSDONE #EndALS #OneFunDay #SummerGolf #SummerFunInTheSun #CharityGolf to #EndALS
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ALS AWARENESS MONTH's FACES OF ALS Gallery of Courage and Strength. Bill Horton, of Amado, AZ. Lost to ALS in 2018 at age 72. My sweet Dad was an amazing contractor; in his spare time, he loved to hunt and fish. He fought ALS the same way he did every-thing else - with quiet strength and courage. His faith never wavered all the way to the end when he passed away on June 11, 2018. Dad, I love & miss you so much. You are forever my hero. Revelation 21:4 💚 Jody To submit a tribute about you or for your ALS hero, simply click https://bit.ly/FOALS24. All tributes are submission-based, and we will honorably include all who would like to be featured. #ALS #ALSawarenessMonth #FacesOfALS #BillHorton #AmadoAZ #ALSangel #ALSWarrior #FacesOfCourage #FacesOfStrength #May #EveryMonth #pALS #cALS #Courage #Strength #Honor your #ALShero #AnyTown #OneWithALSisTooMany #ThisIsWhyWereHere #EndALS
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A fantastic raffle item has been added to SPIKE OUT ALS night at WHS! Buy a ticket or two for a chance at a 3-night Las Vegas getaway! Raffle is now open and will be drawn next Wed., 5/22 but the big matchups are tomorrow, May 15th at Winchester High School as their Boys’ Volleyball Team’s host their annual SPIKE OUT ALS matches, facing St. John’s Prep. JVA & JVB: 4:00pm & Varsity @ 5:30pm. Coach John Fleming has been hosting this very special event each year since one of his teammate’s player’s dad, Rick Marks, was diagnosed, and then in a cruel & tragic twist, Coach Fleming’s own dad was diagnosed a few months later. The world lost those two great men within 4 months of each other in 2018, which was 5 years after St. John’s Prep lost their Coach, Paul “Wally” Seaver, to the disease as well. A horrific trifecta reminder that ALS can strike anyone at any time. We hold each of them each and their families, and the entire ALS community in our hearts. This annual match means so much to so many and together we can and will SPIKE OUT ALS! To support this annual event by purchasing raffle tickets or by making a donation, simply click: https://lnkd.in/eEgjpK9X. Every dollar goes directly to ALS research and care. . #ALS #ALSONE #WinchesterMA #WinchesterBVB #RedAndBlack #StJohnsPrep #InMemory #RJM #WJF #PFS #LasVegasGetaway #LasVegasRaffle #SpikeOutALS #Volleyball to #EndALS
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We hope you'll join us Thursday, MaY 16th at 5:00 pm EST for our weekly Healey ALS Platform Trial update webinar with hosts Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD of the Healey Center for ALS at Mass General Department of Neurology, and founding and lead Platform Trial investigators. Dr.'s Cudkowicz and Paganoni, will give the latest updates and answer questions from the audience. As always, the webinar is free and all are welcome. Register at: https://bit.ly/3KKsme2. Questions: If you have questions or comments that you would like addressed on this week's call, we ask that you kindly submit in advance by emailing: healeyalsplatform@mgh.harvard.edu. #ALS #PlatformTrial #HealeyHope #ALSONE #Unity
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Tomorrow at 4pm EST, join us for the first webinar in our new ALS Publication Review Series, on which we are gratefully collaborating with Northeast ALS Consortium (NEALS). We will be spotlighting "Incorporating Genetic Testing into the Care of Patients with Amyotrophic Lateral Sclerosis/Frontotemporal Degeneration Spectrum Disorders," and we're honored to joined by two of its authors, Laynie Dratch, ScM, CGC, from the UPenn Neurogenetics Therapy Center, and Lauren Lichten, MS, CGC, from the Emory ALS Clinic. Our panel for this review includes @Mandi Bailey from the NEALS Patient Advisory Council, Jennifer DiMartino, ALS ONE’s Executive Director, Justin Kwan, MD, Director of the Neurodegenerative Disorders Clinic at the National Institute of Neurological Disorders and Stroke (NINDS), and NEALS member, and David Shulman, who is a NEALS Research Ambassador and International Patient Fellow. Registration for the webinar is free, and you may log in by going to: https://lnkd.in/g2AXCx97. We also invite you to read the article ahead of time if you have yet to, by clicking: https://bit.ly/IGTICOPALS. . #ALS #ALSONE #NEALS #ALSONECommunityConnect #ALSPublicationReviewSeries #ALSPublication #GeneticTesting #ALSGeneticTesting #FamilialALS #FALS #ALSAuthors #ALSCommunity #EndALS